Wednesday, December 23, 2015

Christmas at school

Today Santa came to Annabelle's preschool and handed out presents to all the children.  They also sang lots of Christmas Carols and Annabelle did some dancing.  All the presents were donated by St. John Fisher College employees.  It's so very generous of them and they even have committed to do it again next year.

After school we stopped by the mall to get a picture on Santa's lap and for her to tell him what she wants.  She has been insistent on a cat and dog.  I love that Santa said "stuffed cat and dog?", nice save santa!  Hope everyone has a very Merry Christmas, we will be celebrating Christmas Eve watching Annabelle's Wish (such a cute movie) then Christmas day at home.


Santa, Mrs Clause and some elves (from the RPD)

Our friend Judah






holding Santa's hand

Playing with Mrs Clause, she gave her the necklace






walking up on her own to get her present




New band, they rock!!


Annabelle was a total groupie of the band!

Only one dancing LOL

Waiting for Santa


No tears!!




Monday, December 21, 2015

Annabelle is 5

Annabelle's birthday is celebrated the first 1/2 of December then we move on to Christmas.  This past Friday we opened birthday presents from Brian's parents, brother and from us (my parents and brother gave her birthday gifts at Thanksgiving).  She loved all the presents so much and enjoyed playing with them all weekend.

Saturday she received two special packages.  One was from Brian's Aunt Winnie and Uncle Bill, it was a ride on horse that makes sounds which she loved and ran all around the house with.  The second one was from her Sunshine buddy, a special match up of special needs kids and people with big hearts who want to bring some sunshine into their lives.  Our family is amazing, they live in Mississippi and she has two girls, one who is Annabelle's age.  They sent a big box of toys for Birthday / Christmas and it definitely brought sunshine to Annabelle.  You can see the happiness in the pictures!

The final gift we received was finding out that Annabelle's running buddy, another amazing group of runners who are motivated by children with special needs and run for them, donated to PMG Awareness Organization in Annabelle's name.  We are very involved with PMGA so this meant so very much to us!  We hope to get to meet up with all of our PMG family someday but until then we continue to raise money for them.  If you are interested in donating, you can at http://pmgawareness.org/donations/

We are still having some issues with the g-tube but are working through them with our GI team.  Believe it or not she actually is gaining too much weight so we had to cut back her calories.  She's gained over 6 pounds in under 2 months but hasn't gone up in height so we need that to catch up along with working on her muscle development.

Wishing you all a very Merry Christmas!!

Playground in December!




Birthday presents, so excited!

Giving Sven some love <3 

Can't go wrong with princesses!

Check up Lambie





Playing fishing



Giving Lambie a checkup 





Being silly riding Sven

Sorting animals


The box from her Sunshine buddy Kim 

So very generous!


Clyde liked the horse


Daddy's workshop is in full gear,
working on a surprise for Annabelle