It also marks 5 years of PT, OT, Speech, Assistive Technology, Vision therapy, ABM, Hippo therapy, Special Ed, swimming, gymnastics, dance, the list goes on and on. It marks 5 years of endless doctors visits, some people do not realize the amount of specialists who are involved. Our short list is pediatrician, neurology, GI, endocrinology, genetics, eye doctor, nutrition, orthotics, orthopedics. And these appointments are not once a year, most are every 3-4 months. As the years have gone by, the appointments have become more spread out, unless needed.
In spite of all this, we pushed on. We tried, even on the saddest days, to keep a positive outlook. We celebrated EVERY small milestone, none were too small to be proud of. She crossed midline, she tapped two blocks together, she made a sound, she tracked an object - our memories are much different than most parents who remember the first word and first steps (although that day was amazing too).
So on this anniversary I look back with a happy heart. Happy that Annabelle has come so far, happy that she is (almost always) smiling, happy that she has beat many of the odds that doctors gave her, and forever happy that she came into our lives. I can't imagine a day without her!
On another note, this week being Feeding Tube Awareness Week, Annabelle had surgery Monday to get her new "mini button" for feeding. The last feeding tube she had was a long tube coming out of her tummy. Now the button is all she has, we connect the tube only when she is eating. As with every surgery, she was a total rock star. She was back in school the next day! As always, some pictures of our silly, spunky girl from the past month or so.
|she wanted to be a kitty so she drew on whiskers|
|After school in her spider hat|
|playing grocery shopping, hard to get a |
non-blurry picture while playing
|ready for dinner!|
|playing some drums|
|Rainbow fist musical with Miss Kate |
(one of her music therapists)
|Annabelle with the cast of Rainbow Fish|
|ready to go out!|
|Made her a new felt board|
|playing in the little bit of snow we have gotten|
|eyes dilated & having lunch at the eye doctor|
|We went to see The Ugly Duckling ballet|
|walking the stairs at the museum - went all the way on her own!!|
|First time she could push the shopping cart on |
her own at museum Wegmans
|we love Strong Museum of Play!|
|LOVES painting, mommy loves mess free paint pens :-)|
|brown bear matching|
|even with the tube we work on oral motor so she doesn't loose it|
|having dinner with Clyde on watch|
|She loves sitting in her pink Bilbo and watching |
videos when mommy is on her computer
Post a Comment